Tag: Alzheimer’s disease Philadelphia

Most Effective Phrases for those living with Dementia

As we know, often it is not what we say, but how we say it, that impacts our probability of success. It is no different than with caregiving.

Someone living with dementia is grappling with a loss of control. They are older adults who have lived their entire lives, led successful careers, raised families, and are used to being in control. It is not easy to accept the fact that they need help from others to carry on with basic tasks.

Therefore, consider the following phrases and how we might change them:

  • I want you to … –> May I help with that?
  • You need to … –> Can I do that with you?
  • That’s not what I told you … –> Would it be alright if?
  • No, not like that… –> How about we try it this way?
  • You can’t… –> How do you feel about this?
  • Let me do that for you… –> How about we do this together?
  • Why don’t you… –> Do you prefer this or that?
  • Don’t you remember? –> This is your (house/sister/son,etc.).
  • Please do this… –> Would you like to do that now or in a few minutes?

In addition to changing our phrases, we can also use new ones when we encounter difficult situations. If your loved one in angered or frustrated, acknowledge how they feel and explicitly express empathy. They do not like their situation any more than you. This will help them feel understood.

walk outside Most Effective Phrases for those living with Dementia

Some of these ideas came from the Mayo Clinic’s magazine “Living with Dementia”, specifically Chapter 3, p. 42.

How to Help Your Elderly Parents Move House

It’s more likely that our parents will need to relocate to a new house as they age. Moving your parents into a new house may be challenging and stressful, whether due to their deteriorating health, the death of a spouse, or simply because their existing home is no longer adequate for their requirements. This blog article will review the importance of relocating your elderly parents, getting them ready for the change, and making the transfer go as smoothly as possible. After reading this article, we hope you understand what must be done to ensure your elderly parents receive the proper care.

Elderly Parent Moving How to Help Your Elderly Parents Move House

Communicate openly

Seniors may have an emotional attachment to the house they’re leaving, so it’s normal for them to feel sad and uncertain about the transition. It might be challenging to discuss the move with your elderly parent, but doing so can help the transition go more smoothly. Give them time to adjust to the change and talk to them about where they will live and why they are going. Giving your loved one as much control as possible while they plan and carry out the relocation can help them feel less stressed when asked to leave their long-time residence.

Make a plan and downsize

There is no such thing as early planning when you need to help your elderly parents move house. Downsizing their stuff with them before you start packing is an excellent place to start, especially if they are relocating to a place considerably smaller than their present residence. You may lessen the tension and any sense of being kept hostage by their possessions by selling, recycling, giving unwanted goods as gifts to relatives, or donating them. That is a sensitive procedure you should go through with your parents, at their own pace. You may always hire a professional to help if you’re having trouble finding the time or the emotional stamina for the task. The expert will sit with them and assist them with decluttering and downsizing, listen to their tales, and ensure that each thing goes to its proper home.

Rent a storage unit for what’s left

Your loved one might not be quite ready to part with particular objects. Maybe they want to entrust them to future generations. Whatever the reasons, it’s possible that you’ll have to rent a storage unit to keep the rest of their possessions. Storage facilities are a safe, practical, and accessible solution for anyone needing to store their belongings temporarily during relocation. Furthermore, suppose you need to relocate somewhere in Philadelphia. In that case, local movers can help you get your items safely to any location, whether it is your parent’s new home or a storage unit. Professional movers will offer expert help with any task, making your relocation a breeze.

Involve the rest of the family

It’s not necessary to help your elderly parents move house alone. Even if you may take the initiative, don’t be reluctant to enlist family members to share the workload. One person may, for instance, be in charge of getting moving supplies and finding a storage facility, while another compiles an inventory of every item in the house by room. This procedure will simplify relocation and assist in reuniting the family for a significant life event.

Start packing

Nobody likes packing the night before a move, including your elderly parents. You want to prevent unnecessary tension, which might result from unpreparedness. As a result, start packing as soon as you have assisted them in decluttering and know what will be moving. Work your way through the house packing the items that aren’t used frequently first before moving on to the items required daily. You may even hire a professional to pack and move your parent’s possessions for them, relieving the tension even more. Doing this assignment early can save you worry in the long run and make the relocation a much simpler process.

Clean the old house

You still have much work to do after you finish organizing and packing. Whether you sell the old residence, rent it, or give it to another relative, you must do the same tasks. Therefore, consider cleaning the house and making necessary repairs before they become irremediable. Taking care of maintenance concerns immediately rather than later when the property is up for sale is preferable.

Prepare the new house

After you’ve located the ideal new residence for your elderly parents, it’s essential to check that it is senior-friendly. That entails making sure there are no stairs or steps that can present fall risks, the restroom is simple to use, and the kitchen is spacious enough to walk around without being restricted. Also, pay attention to how you organize the new home. For example, if the arrangement of the pictures on the living room wall was the same for as long as you can remember, carry it over to the new house. If you need to buy new furniture, arrange things in the same order and include decorations like throw blankets and pillows. Additionally, put pots and pans where you know your loved one can find and reach them.

Transfer paperwork

If your parent is relocating far away, they might need to replace their dentist, doctor, or any other services they have. That may be a specific aspect of moving, but if your family has been seeing the same physician for a long time, the change in routine might be stressful. To prevent papers from sitting at their previous location, make the address changes as soon as possible. Additionally, have their mail forwarded to the new address.

Make the travel arrangements

Transportation may be a little more complicated, depending on how far you relocate your elderly parents. A short vehicle trip is not too challenging if you relocate them down the street. But, if they are traveling a long distance, the physical journey may become problematic. Will your elderly parent feel comfortable driving a long distance in a car? Is it preferable to transport them by train or plane? Find that out and plan a schedule that works for both of you. However, no matter how you plan to transfer them, wait until all their possessions are moved and unpacked.

Final thoughts

As you can see, it’s not that difficult to help your elderly parents move house. All you need is a good organization and a well-thought plan. Your loved one should experience a smoother transition if you carefully plan the relocation and the new house is ready to welcome them.

Caring for a Senior Loved One: When to Move Closer

Modern technology has enabled people to work and communicate from any part of the world, resulting in many families scattered around several cities and states. However, there are instances when your physical presence and attention are needed. Taking care of a senior loved one presents specific practical challenges that can’t be managed from a distance. Relocating to a new city can be traumatic for your loved one, and there are times when moving closer is the best option. But what are the telltale signs that the time has come?

Today, NursePartners shares some tips to help you recognize and respond to the signs.  

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Signs Your Senior Loved One Needs You

Parents and close relatives who’ve been leading independent lives may not want children, family, or other loved ones to know they require increased care. You may notice their eyesight is deteriorating, and they’re less mobile and active than before. For example, they may have difficulty with day-to-day tasks, such as driving and cooking. A loss of interest in activities and hobbies they previously enjoyed may indicate they suffer from depression and feel isolated.

Before contemplating any action, take a trip to visit them, and talk to friends and any caregivers. By getting a realistic picture of their current situation, you can make informed decisions on the best plan moving forward.

Taking Steps to Move

One of the primary challenges of moving is finding a new home. The best way to overcome these challenges and avoid an emotion-driven purchase is to rent a property in an area close to where your senior loved one lives to assess the situation.

If you plan to purchase a home, for example, top mortgage lenders can help you. The house you can buy depends on your monthly income and total monthly expenses. It means that you have to add up your monthly expenses and divide the total by your gross monthly income. Some online calculators can assist if you aren’t sure how to calculate your debt-to-income ratio. If you’re unfamiliar with the area, it’s a good idea to get a feel for the market and the prices you can expect.

Lastly, develop a plan to help you prepare for the move itself. Don’t think you need to do everything yourself. You can do yourself a big favor by searching online for “movers near me,” then browsing ratings and reviews to get the best deal.

Getting a jump start on this can make all the difference in the world; the sooner you start making a plan, the smoother the process can be. Sure, there will still be a few bumps in the road, but planning ahead is essential when you’re moving — especially if you’re moving yourself and your business.

Arranging Care for Your Senior Loved One 

Your loved one may experience loss of memory, act impulsively, or lose their balance when walking, which may be indicative of the early stages of dementia. Depending on the level of care your loved one needs and the amount of time you can spend taking care of them, consider using professional caregivers’ services. In many cases, seniors require specialized treatment as their condition advances.

Take Preventative Action

Whether or not to move closer to a senior loved one isn’t an easy decision, as it involves several changes for you and the person you’re caring for. By carefully assessing the situation and determining the actual level and need of care, it can help make a move successful in the long run.

NursePartners provides services to assist someone living with this ever-changing condition to help them live fully in their moment. Call 610-323-9800.

This article was submitted by Donna Erickson.

Advice from Centenarians

Centenarians have a lot of lessons to share with us!  As our life expectancies increase, it is worth learning from these three individuals, who are still living relatively good lives being 100 years old (or more)!

Some of their advice includes:

  1. Eat fresh food, including preparing it yourself.
  2. Communicate and be open to new ideas.
  3. Reminisce fondly on those who have passed already.
  4. Keep up with the times and adopt technology.
  5. Invest in fulfilling marriages.
  6. Stay independent, but know when to ask for help when you need it.
  7. Be happy and keep in equilibrium.

To learn more, watch the video below.

NursePartners home care team can keep mom and dad functioning at their best.  We help older adults with the activities of daily living, in order for them to focus on enjoying life.  Services range from basic companionship to 24/7 support for all needs.  Call us today to learn more 610-323-9800.

 

Are you Connecting?

Connecting

Never underestimate how important it is to empathize and communicate effectively with your loved one living with dementia.  All too often they become “different” or “unreachable” as their dementia develops. You might despair that the person you once knew is completely gone.

You may grow tired, frustrated, or even angry with your loved one; and from this position any hope of healthy and effective conversation is lost. The good news is that we are in control of these emotions.  With a little bit of compassion, we can find new ways to say hello and build engagement with our loved ones where it is still possible.

 

How can we learn to understand?

In the early stages, talk to them! Ask simple, genuine questions.  See if they want to talk to you about what they are going through and changes they are noticing.  This is going to require patience, your most important skill going forward.  You might as well begin developing it now!  Remember your body language will need to match what you say.  Want to learn more, read our previous post.

In addition to simple conversation, you may want to consider joining a support group or looking for other resources online.  Some of these resources are authored by those who are experiencing dementia themselves. These will help us understand what a loved one is going through.

One blog that we recommend is My Voyage With Dementia. The blog is a collection of thoughts from a 79-year-old man living with dementia in Canada. The author, Bob Murray, uses his blog to keep his mind active and to fight against decline.  He has created an expansive collection of writings that give us an unfiltered look into what the world is like through his eyes.

Another great read is Dancing with Dementia; a book written by Christine Bryden who was diagnosed with dementia at 46. Dancing with Dementia records Cristine’s experience living with dementia, exploring the effects of memory problems, loss of independence, difficulties in communication, and the exhaustion of coping with simple tasks. Like Bob, Christine’s writing is used as a tool of empowerment and shines a valuable light onto the perspective of a person with dementia.

At the end of the day, the more you are informed about dementia the more you can understand the experiences of your loved one and the better you can care for them. It is important to know the facts, the objective data, the things the doctors will tell you about dementia, but it is also essential to know how to connect emotionally.  How do they really feel?  What does the world look like to them?

 

Work with an expert

NursePartners has been working with older adults since 2002.  We love it so much that it is all we do.  All carepartners are dementia trained by certified dementia practitioners.  Want to know more about how we can help you?  Give us a call today at 610-323-9800.

 

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Denise uses the Positive Physical Approach to Care to guide non-verbal client

Visiting a loved one with dementia

The relationships we have with others form a central part of our identity. However, these relationships change with someone living with dementia. As the disease progresses, we need to change our approach and still work to mitigate the possibility of social isolation.

Those living with dementia may find it difficult to recall friends and family and the many shared memories created with them. Although they may forget, it is important to continue to visit them as social isolation will still lead to loneliness. Socialization may even slow the progression of dementia.

Here are some tips on how to spend your time together:

 

  • Focus on the present. If you focus on your current environment by engaging them with new tastes, smells, and things to touch.   Do not quiz or force their memory. If conversation is tough, try singing, playing an instrument, or even dancing. You can share a moment without having a long conversation in words.
  • Make them feel needed. Even though they are living with dementia, they still need to contribute. Give them a task to do so they feel helpful rather than a burden.

 

  • Watch your voice tone and connotation. Just because they are living with dementia does not mean they do not have feelings and emotions. If they do not respond, it does not necessarily mean they did not understand what you said. If you hurt their self-esteem or dignity, there may be a backlash.

 

  • Although you want to make them feel needed, keep tasks simple. Focus on one topic at a time. If you are offering choices, try to limit them to two or three. Open ended questions are particularly difficult as the diseases progresses. If they get lost in conversation, you can gently remind them by continuing the conversation instead of pointing out that they forgot.

 

  • Use names with the relationship. For example, instead of just saying “your son” or “Michael”, say “your son Michael” is coming to visit today.

 

  • Watch your body language. This includes your face. Your faces and expressions can indicate that you are not being genuine in your messaging. The person will pick up on this and can react adversely if your overall message is not consistent.

 

  • Minimize external distractions that may exist in the background of your conversation. Spending time together in the right environment can make all the difference when you are visiting a loved one with dementia. Try talking in a comfortable, quiet place, and avoid any other noises which could be coming from a TV or radio. If you position yourself in their line of vision and stay still while you are talking, you will help make the conversation easier to follow.

Remember, the amount of time you spend visiting a loved one with dementia can make all the difference in their quality of life. As we live through quarantine, consider the overall quality of your loved one’s life. Consider companionship options with certified nursing assistants who can assist with care as the disease progresses. Continual social interaction will help improve the quality of life for those living with dementia, with earlier intervention being more rewarding.

Want to learn more about the NursePartners difference?

Call us today: 610-323-9800.

Grandmother with granddaughters Visiting a loved one with dementia

 

Understanding the Progression of Dementia

Dementia is a progressive condition, worsening over time, eventually leading to death. Many people never are diagnosed, and for others, it might take years to realize something has changed.

As a caregiver or loved one, it is important to look out for these changes, recognize them when they occur, and adapt the level of care as needed. To learn about your loved one’s state of dementia it is important to talk to them about it. Ask them what they are feeling and if they are noticing any differences in their ability to think or to remember things. However, be aware that many people living with dementia may not realize something has changed. If they do not want to discuss these changes, do not press them or show frustration yourself.

Take notice of any patterns of behavior as they arise and be sure that your loved one knows you love and support them as these changes occur. As dementia progresses   it is common for our loved ones to begin to feel guilty about their condition, to feel as if they are a burden on others. If left unchecked these feelings can develop into a serious depression and can add to the stress they are already experiencing. This inability to connect and comfort patients is a persistent problem in the way that a lot of caregivers approach working with someone living with dementia.

To connect with someone living with dementia, we need to join their world, not force them to conform to ours. Instead of resorting to antipsychotic medications and confinement, try embracing what they still do well. While there is merit in a lot of the medications being provided today, there is often so much more we can do for our loved ones when we are able to understand and sympathize with what they are experiencing. In other words, patience and compassion can go a very long way when caring for a loved one with dementia.

NursePartners’ approach to Alzheimer’s and dementia care is based on The GEMS™: Brain Change Model created by Teepa Snow. NursePartners recognizes the Teepa’s Positive Approach™ to Care as an effective method to provide care for loved ones affected by dementia. This approach categorizes dementia stages with six different gemstones, defined by unique characteristics. Click here for an overview of the classification system.

By being able to identify what stage of dementia your loved one is currently experiencing, you can create a style of care that helps them to feel loved and at ease. For example, patients classified under the Amber gemstone find great pleasure with hands on activities like painting, stitching, or drawing. While doing these activities patients are often observed to be focused, calm, and at peace; and when caring for a loved one with dementia, minimizing anxiety and maximizing these times of eternal peace is a great example of providing great care.

To learn more about NursePartners and the services we are able to provide for you and your loved ones, check out our Services Overview.

 

Free Evaluations for those living with dementia

Do you have a loved one living with Alzheimer’s disease or another form of dementia? NursePartners is offering a free evaluation that can serve as the basis for their plan of care*. This offer is valid until May 31 if you mention this ad. We are available 24/7/365 at 610-323-9800.

We work with families to weave together an authentic plan of care, incorporating the client’s life histories, preferences, and strengths. This serves as the bedrock for a care plan that focuses on what the client still can do, instead of what they cannot.

NursePartners was founded in 2002 and only cares for older adults. This is because we are passionate about our work and caring for those who have cared for us. Each case is managed by a registered nurse and certified dementia practitioner. They handpick certified nursing assistants to work with each client, based on the employee’s experience, passion, and interests.

Over the years, we have supported clients living with many different types of dementia including:

  • Alzheimer’s
  • Frontotemporal
  • Lewy Bodies
  • Vascular
  • Mixed

No two people are the same, and the journey through dementia is different for everyone. We understand this and have worked with many families over the years. NursePartners practices the Positive Approach to CareTM as developed by Teepa Snow. To learn more, click here.

 

 

* NursePartners waives the evaluation free for clients that plan to use the evaluation as the basis for a plan of care with services through NursePartners.  This is confirmed through payment of a deposit prior to initiation of services.  Clients who would like a plan of care for private use may also contact NursePartners.

So, you can do it all by yourself?

It is a natural instinct to jump into the caregiving role. What else would you do for someone that you love? If it is a parent, what better way to return the favor for them raising you? If it is a spouse, you vowed to take them in sickness or in health.

Yes, you should pitch in to care for your parent or spouse, but not alone. Unlike raising a child, an older adult has lived a life rich in experiences and has needs very distinct from a child. Also, unlike a child, the care recipient will become more dependent on you over time, which is a different outlook compared to a child who is growing, developing, and becoming ever more independent.

If you are caring for someone living with dementia, it is even more important to prepare yourself mentally for the road ahead. Have you heard of Teepa Snow’s Positive Approach to CareTM? NursePartners practices this methodology while caring for our clients. As clients progress through the stages of dementia, we focus on what they can still do, not on what they cannot. There are still ways to connect, even far along in the disease progression.

It is important to build your care team. This can mean you and many family members, a completely private staff, or a combination of family and private. Never underestimate the value of having certified nursing assistants in the home, overseen by a registered nurse.

Without a care team, both the carepartner (you) and the care recipient are left with a bad situation. The carepartner is unsupported and operates in a high stress environment, often neglecting their own needs. Over time lack of self-care not only hurts the carepartner, but becomes reflective in the care delivered. Care becomes more routine and less focused on creating meaningful interactions. These meaningful interactions are important for someone living with dementia, especially as their way of communicating evolves over time.

Want to add us to your care team? Call us today to learn more about how NursePartners can better support your loved one at home, or wherever home may be: 610-323-9800.

 

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Dementia during the Holidays: Emerald

Brain Change Model

This is the continuation of our series about connecting with a loved one, living with dementia, during the holiday and winter season.

In the previous article about Diamonds, we discussed someone exhibiting the first signs of dementia. About half the time, the person and/or their loved ones, may not know they are living with the disease. During the Emerald stage, the signs become more obvious.

The path is different for everyone

The previous article defined dementia. It is important to remember that although there is a general disease progression, the path will be different for everyone, primarily for two reasons:

  1. There are different types of dementia. A dementia is defined by at least two parts of the brain with larger accumulations of insoluble tau protein tangles and amyloid plaques protein molecules. The brain is subdivided into many parts, specializing in different functions. If some parts are more compromised than others, this will impede upon a person’s daily existence in a unique way.
  2. We are all different. Our personalities and life histories will play their role. Repressed desires or family conflicts may reappear as the person loses the ability to filter their words, put their feelings in context, and control their actions.

 Seeing the glass half full, engage with your Emerald

  • The person living with dementia will still feel capable and independent, and usually has a very limited awareness of any change in their ability to complete most tasks. Allow them to participate as much as possible in their routine daily activities. Remember to do with instead of for them.
  • There will be times when your loved one appears much more lucid. They will remember and then forget. Look for changes in their cognitive reasoning skills and ability to perceive others’ feelings. Anticipate faulty logical trains of thought and help steer them towards better decision making, by including them in the process. If they appear inconsiderate of your feelings, it is not their fault, but cause of the disease. This is especially common in frontotemporal dementia types. Do not take offense.
  • Their ability to understand language is changing. Begin to introduce other visual and touch cues while speaking. Change the way you speak but remember not to be condescending. If you speak to them as a child, they will pick up on this and your relationship will worsen. We recommend speaking slowing and repeating the same words in your sentences to convey singular thoughts.
  • They will repeat themselves. Although this can become exhaustive to the listener, try to avoid stating the obvious, that they already said the same thing before. They will not be able to help it or remember not to say it again. Insisting on logic in these situations will only further tire the caregiver and recipient.
  • Notes, along with other visual and touch cues, will help them complete a daily routine. The more consistent the routine, the better muscle memory will guide them through their day.
  • Do not insist on awareness of the correct time, place, and situation. Meet them wherever they are and make the best of that moment. If they are packing for a childhood vacation, pack the suitcase, and use this as a time to talk about their favorite childhood memories. You can often spin these situations into others that allow you to bond with your loved one.
  • Beware of strong emotional reactions. These are often based on fears, desires, or unmet needs. Your loved one will become increasingly incapable of verbally expressing themselves, so find refuge in other senses, such as smell, taste, and sounds. These can serve as emotional outlets in times of frustration.
  • They will look to you to fill their day with meaning. They are either on the go and cannot unwind, or the opposite, not being able to begin their day without you. The more you emphasize a routine, the better they will feel. Show gentle guidance and assist, remembering to include them in the process.

You will need a team

If you have not started building your team, now is the time. Your loved one is beginning to depend on you for their daily routine. If you are the only one, as their dependence grows to include physical needs, you will also be the natural provider.

Remember, someone living with dementia does not have needs that are met at your convenience. Increasingly they circadian clock will not match yours. They may lose ability to perceive your own frustrations and sleep deprivation. They will begin to not parse words or practice tact in conversation. If you are the only caregiver, under a lot of stress, this quickly leads to a deterioration of your relationship, and subsequently the health of both the caregiver and recipient will suffer.

Assessments at no cost

NursePartners has decades of experience constructing care teams to support older adults. If you reference this article, we will provide your loved one a wellness assessment at no cost. Call us today at 610-323-9800.